Supporting young people in the transition to adult healthcare services | Latest News

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Supporting young people in the transition to adult healthcare services | Latest News

Supporting young people in the transition to adult healthcare services

Lancashire Teaching Hospitals NHS Foundation Trust is supporting a national campaign in collaboration with Roald Dahl’s Marvellous Children’s Charity this International Youth Day.

Roald Dahl’s Marvellous Children’s Charity raises the standard of healthcare provision for young people transitioning from child to adult services and has launched an ‘Everyone’s Business’ Campaign on International Youth Day today with support from Lancashire Teaching Hospitals.

‘Everyone’s Business’ has been launched to highlight the importance of quality healthcare service provision for young people with serious and complex health conditions. The campaign celebrates the charity’s continued commitment to transition through its £300,000 funding for new Roald Dahl Transition Nurse Specialists.

Earlier in the year, Roald Dahl’s Marvellous Children’s Charity invited NHS organisations nationwide to apply for funding for Roald Dahl Transition Nurse Specialist posts, as part of its strategy to take practical action to address the gap in quality transition care in the UK.

The charity has already funded four Roald Dahl Specialist Transition Nurse posts including one Roald Dahl Epilepsy Nurse Specialist post at Lancashire Teaching Hospitals, which is held jointly by Karen O’Neill and Jennie Read who work part-time on a job share basis.

Karen and Jennie support children, young people and families affected by epilepsy and they provide specialist care from the day of diagnosis, through to their transition to adult healthcare services. This specialist post held by Karen and Jennie is leading the way for quality transition care and as part of their role, they educate and empower young people to be independent and manage their own health. They advocate on behalf of families in their care and work with other departments at the hospital to ensure care is coordinated effectively. They also undertake outreach work in the community to educate people about epilepsy and how it affects young people.

The ‘Everyone’s Business’ campaign also aims to highlight how transition affects children, young people, family life, communities, healthcare professionals and the wider NHS. It comes at a pivotal time for transition services as NHS Improvement launched its ‘Improving healthcare transition for young people and young adults collaborative’ programme.

“Children and young people account for 25% of emergency department attendances and are the most likely age group to attend A&E unnecessarily” says Angela Horsley, Head of Children, Young People and Transition at NHS England and NHS Improvement. The national collaborative which Angela is leading on is working to improve patient experience and achieve the best possible future healthcare outcomes for young people with long-term conditions. It also wants to see enhanced coordinated care and a cultural shift within healthcare organisations to support and meet the needs of young people. These objectives are aligned with Roald Dahl’s Marvellous Children’s Charity’s strategic aims and the step-change in the quality of transition services it wants to provide for all young people, building a better quality of healthcare provision for them in years to come.

‘Everyone’s Business’ will see current Roald Dahl Transition Specialist Nurses, young people in receipt of their care and a parent reflect on their experience(s) of transition and why it’s important that others recognise the importance of quality care through a series of short videos. The campaign launches within the backdrop of International Youth Day on 12 August 2019 – a day that highlights issues that matter most to young people.

Hear from Karen and Jennie about the campaign here:


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