We have signed up to a national campaign to boost dementia research.
The Prime Minister, David Cameron, has launched the government's five year vision for the future of dementia care, support and research as part of his ‘Challenge on Dementia’ that was launched in March 2012.
The vision includes strong ambitions to boost dementia research, train more health and care staff, follow up timely diagnosis with greater access to help, advice and support for people with dementia and their carers, increase public awareness and create more dementia friendly public and private organisations and communities. We are committed to supporting this vision.
We are working in partnership with Lancashire Care NHS Foundation Trust to deliver research studies to people with dementia and their carers or families. We have a team of nurses who offer people with dementia the opportunity to be involved in clinical drug trials and quality of life research studies. The nurses have recently won a Nursing Times award for the work that they have been doing in dementia research.
‘Join Dementia Research’ has been launched by the National Institute for Health Research (NIHR), Alzheimer’s Research UK (ARUK) and Alzheimer’s Society to increase the numbers of people participating in research. This allows patients, carers, public and professionals to sign up to register their interest in research and potentially take part in high quality studies.
‘Join Dementia Research’ will make participation in dementia research simple. It involves an online service where people who are interested in taking part in dementia research studies can enter their details into a secure database, allowing researchers to approach people to invite them to take part in specific dementia research studies.
Anyone can sign up because, in addition to people with dementia, research studies also need to recruit healthy participants as control subjects. Alzheimer’s Society and ARUK are making this service as accessible as possible to people with dementia by providing helpline support to those who don’t have internet access.
In outlining the Dementia Challenge the Prime Minister stated “We still have much more to learn about the basic physiological and pathological processes leading to dementia. We lack treatments to delay the onset or slow it down. We also lack a full understanding of how to determine which individuals are at risk of developing dementia, of how to reduce this risk, and of how to distinguish different forms of dementia so that we can target treatments appropriately. We have only partial evidence as to the best ways to care for people with dementia, treating symptoms, meeting personal care needs, and offering support for carers and families including at the end of life.
Nichola Verstraelen Lead Dementia Research Nurse at Lancashire Teaching Hospitals said: “This is a new exciting way to potentially reach out to people who are affected by dementia and offer them the opportunity to find out about research studies. The majority of people would rather be made aware of what studies they can take part in and have the option to say yes or no, than to not be given that choice. Everybody knows somebody who has been affected by this condition and we are hoping that staff can help promote this to patients, visitors, families and clinical staff. We have dementia champions in our hospitals who can support people who may want to get involved.”
This is a new exciting way to potentially reach out to people who are affected by dementia and offer them the opportunity to find out about research studies.
If anybody is interested in our dementia research, please contact Nichola Verstraelen, Lead Dementia Research Nurse by emailing firstname.lastname@example.org
tel no - 0300 111 5111 – Alzheimer's research UK
Alzheimer's society - 0300 222 1122