Job Title: Consultant Paediatric Neurologist
Department: Child Health
Telephone Number: 01772 522246
Primary Medical Qualification: Artsexamen (Netherlands)
Other Qualifications: MRCP MRCPCH DCH
Year of Registration: 1996
GMC Number: 4323378
Career History: Undergraduate training at Leiden University in The Netherlands. General Professional Training with Senior House Officer rotations in Aberdeen and Newcastle-upon-Tyne, and Higher Specialist Training in Paediatrics in the Oxford Deanery. Experience of acute care of children in hospital, consultations in out-patients, and the long-term care of children with disabilities in the community. Obtained a National Grid Post in Paediatric Neurology in the North Western Deanery, and trained in this subspecialty for four years. Locum Consultant with a neuromuscular lead, Royal Manchester Children's Hospital. Locum Consultant post with an epilepsy lead, Royal Preston Hospital. Currently Consultant Paediatric Neurologist for Lancashire Teaching Hospitals NHS Foundation Trust
Specialist Areas: Neuromuscular lead for Lancashire; neurodisability lead for Lancashire, including tone management service and acquired brain injury service for children
Specialist Interests: Neuromuscular disease; neurodisability including tone management; demyelinating disease
Research Interests: Neuromuscular disease; neurodisability including management of cerebral palsy; demyelinating disease; Paediatric Specialty Group Lead for the Medicines for Children's Research Network for Lancashire and South Cumbria
Clinics: General Paediatric Neurology Clinic; Tone Management Clinic
Languages Spoken: Dutch; English; German; French
Awards and Prizes: University of Leiden, pre-clinical examination passed with honours
New Neuromuscular Team for children and young people
Lancashire Teaching Hospitals NHS Foundation Trust has held a launch event to introduce the new Neuromuscular Team for children and young people in Lancashire and South Cumbria. The event was attended by patients, their families, health professionals involved with neuromuscular care and representatives from some of the charities which support people affected by neuromuscular conditions.
The paediatric neurology service at Lancashire Teaching Hospitals provides neuromuscular services for the Lancashire and South Cumbria region. There are currently around 100 children with neuromuscular disorders in Lancashire under the care of Dr Christian de Goede, a consultant paediatric neurologist and the trust’s neuromuscular lead.
He said: “There have been many advances in treatment and support for children with neuromuscular disease over the last ten to 20 years, which means that children with these conditions can now expect to grow into adulthood. This new team has been created to ensure that children with neuromuscular conditions, and their families, have ongoing access to the necessary expertise and a wide range of support, close to home, which can help them manage their complex needs.”
The new team will be based at Royal Preston Hospital and, in addition to Dr de Goede, includes a specialist neuromuscular nurse, physiotherapist, clinical psychologist and occupational therapist.
Sue Hardman from Preston has a five year old son who has Duchenne muscular dystrophy. She said: “This is just fantastic news. Our family have been struggling to cope since our son Charlie was diagnosed with Duchenne muscular dystrophy in 2011. When he was finally diagnosed it knocked me into pieces. This new team will offer a desperately needed one-stop shop for care and support – a major turning point for children and families affected by these conditions in the region. Having a team of professionals close to home, which we can turn to, not only for practical medical care but also for emotional support, will make an enormous difference.”
Nic Bungay, director of campaigns, care and information at the Muscular Dystrophy Campaign, said: “The appointment of the new specialist team will be a lifeline to hundreds of children and families across Lancashire and South Cumbria. We are absolutely delighted to hear that Lancashire Teaching Hospitals is launching a new multi-disciplinary team that can support vulnerable families with vital specialist information on health problems, treatments and the right emotional support.”
Chief Executive of Lancashire Teaching Hospitals, Karen Partington, said: “I am delighted that we have responded to the needs of local patients with neuromuscular conditions and their families by establishing this new team. Children with these conditions have extremely complex needs, and the multidisciplinary nature of the new team will ensure that they have access to the full range of care and support that they need.”